Thursday, 10 September 2015

We finally have a diagnosis, Liam's Story


I have sat down to write this post tonight and I don't really know where to start....... back in June I shared Liam's journey so far it has been years of appointments, different pediatricians, cancellations of appointments and at school Liam is Just getting worse I shared in July the fact that Liam was suspended much to my disappointment ... The whole journey has been an up and down roller coaster ride and we have been waiting for today's appointment since before the summer holidays. The health visitor had already warned me that Liam Didn't fit into any sort of "box" his behaviours were to complicated and to complex.

After a long meeting today with Liams school teacher, educational psychologist, paediatrician, health visitor and teacher acting on behalf of Senco. The paediatrician listened hard to everything everyone had to say and was writing lots of things down. She had made her decision about Liam he has ASD Autistic spectrum disorder with some anxiety.

Although I had my suspicions and suspected this would be the case in that moment I felt like someone had just punched me in the stomach. I guess its different speculating than someone out right telling you that your child has autism - I think a small part of me was hoping that I was wrong that he was just a "typical boy" or maybe even just a bit naughty. but its not the case, I think I'm still slightly shocked, still feeling broken hearted when it is your child you want to wrap your child up make them better but autism isn't a disease or an illness you cant make your child better its a life long journey or battle in some cases.

Autism - is a world of the unknown for us as a family but I am learning something new about it everyday.



A Letter to you Liam 


My beautiful son Liam, 

Today was the day you were diagnosed with ASD, I know life is going to be tough for you, but I know with a diagnosis now you will get the support you will need it will open lots of doors for you, I know there will be so many opportunities for you to get the right support you need to help you to cope with life itself.

I am hoping this diagnosis, will help us to understand you more and to help you as you get older understand yourself, I realise that everyday is difficult for you, you find it hard to make friends and for you Liam variety is definitely not the spice of Life. but listen to your mum when I say

This diagnosis does not define you  


You are still the same little boy you were yesterday, you are funny, caring, energetic, and I love that you can tell me all about the water cycle and platelets and plasma. Everyday with out prompting you tell me how much you love me you make me so proud. As your mum I am going to make sure I do everything I can to help you to reach your goals in life... I know you can be anything you want to be I want to see you get good grades in school I want to see you get a fantastic job that makes you happy or travel the world, and maybe even meet a girl settle down and get married.... whatever you want to do, what ever battles you face we will always be here for you.

I have never thought of you as a child with special needs and still in my eyes you are not, but you are special and different, but it would be boring if everyone was the same, you are such a strong little boy you are a privilege to know and you make me smile everyday I love you to the moon and back and this is just the beginning

Love always mummy x



A Cornish Mum




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5 comments:

  1. Oh lovely! Sending you lots of love and hugs! You have got it bang on though, they can give Liam any diagnosis they want, he is still Liam and still your gorgeous boy! I suppose the one very positive thing you will get now is lots of help for Liam to live his life to the fullest!

    Laura x x x

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  2. This is so beautifully written the whole thing brought a tear to my eye. I'm happy for you both now that a diagnosis is in place you should have the support you need but I 100% agree with you he is the same sweet boy and I'm sure with you in his corner he will always feel that way

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  3. Beautiful post. With a mum like you he's a very lucky boy you'll both learn so much from each other over the coming months I wish him all the best xxx

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  4. What a beautiful letter to your boy. You are so right - he is still your boy, you are still his mum. The journey of parenting isn't always easy but you sound like such a great mum and you will do a wonderful job by your boy. At least now you can work with what you know. Thank you for linking to #PoCoLo x

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  5. Oh Helen lovely this must be so hard, but at least with a diagnosis they can help with coping strategies and hopefully make people more understanding! Thanks for linking up to #PicknMix

    Stevie x

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